I Made Other Plans

Welcome!

Welcome readers! We invite you to follow us on our journey.

We are a mom and daughter who both struggle with Ehlers-Danlos Syndrome and have decided to run a half marathon! 

We realize that having this physical disorder will make this a difficult and painful experience. But we hope to be an inspiration to others by committing to this marathon and seeing it through to the finish line no matter how much our bodies dislike it.

Everyday tasks for us can be excrutiating. Getting out of bed, holding a hair brush, gripping the steering wheel. . . We have been given advice by our doctors on how to live a life of moderate pain. But the bottom line is that no matter what precautions we take we still hurt at the end of the day. So if we're going to hurt at the end of the day we're going to make it happen because we did something! And not just every day thing like opening the refrigerator door or writing with a pencil. 

We will be running our race in Dublin, Ireland.

In doing this we hope to conquer our physical bodies. Ehlers-Danlos Syndrome let's us know every minute of every day what it would like us to feel and what it would like to do with our bodies. But we made other plans. We have children, and grandchildren, jobs and lives that require the use of our bodies. So, since we're going to hurt anyway, we're just going to go ahead and live.

Thanks Ehlers-Danlos for letting us know what you want to do with our bodies, but we made other plans. And the plans don't include you controlling our bodies.

Please follow us and help us as we go through this journey. We will seeking advice, encouragement and would love to hear about your own stories and experiences about not letting EDS or other physical limitation control your life.

We look forward to making many new friends through this experience and hope to be an inspiration to many!

Leave us a comment and we hope to stay in touch and build a support group with you all.